LEADER 03026cam a2200373 i 4500003 hubpceuo 005 20190314095848.0 007 ta 008 151130s2016 nju b 001 0 eng 010 2015032497 020 9780813574363 (hardback) 040 DLC |cDLC |beng |erda |dDLC |dhubpceuo 042 pcc 043 n-us--- 050 00 KF1263.H57 |bL39 2016 082 00 342.7308/58 |223 100 1 Lawrence, Susan C., |eauthor. 245 10 Privacy and the past : |bresearch, law, archives, ethics / |cSusan C. Lawrence. 260 New Brunswick : |bRutgers University Press, |cc2016. 300 x, 169 pages ; |c24 cm. 337 unmediated 490 0 Critical issues in health and medicine 504 Includes bibliographical references (pages 153-164) and index. 505 0 Introduction : The Historians, the County, and the Dead -- Research, Privacy, and Federal Regulations -- Historians, the First Amendment, and Invasion of Privacy -- Archivists at the Gates -- Managing Privacy : Historians at Work -- Conclusion : Resistance. 520 "In 2006, a HIPAA Compliance Officer in a rural Iowa county wanted to shut down a graduate student's research on a manuscript register of those admitted to a poor farm in the nineteenth century. The reason? It contained sensitive health information that could affect the well-being of living county residents. The 2003 HIPAA Privacy Rule did, in fact, protect this document from historians' prying eyes. In Privacy and the Past, Susan C. Lawrence explores why she found this experience so troubling. In the process, she explores historians' ethical obligations to their research subjects, both the living and the dead. She queries the extent to which we do and should control access to information about people as historical actors and as unwitting participants in past events. She questions who gets to decide what is revealed and what is kept hidden in decades-old records. She examines laws and court cases, and tackles archives and archivists. She looks at how demands to maintain individual privacy both protect and erase the identities of people whose stories make up the historical record. She encourages historians to vigorously resist any expansion of regulatory language that extends privacy protections to the dead. This book offers a critical analysis of the ways that broad privacy concerns shape how and when historians can understand individuals' lives as they created our collective American past. "-- 650 0 Privacy, Right of |zUnited States. 650 0 History |xResearch |xLaw and legislation |zUnited States. 650 0 Historians |xLegal status, laws, etc. |zUnited States. 942 |2ddc |cBK 952 |00 |10 |2ddc |40 |6342_730800000000000_58_LAW |70 |8REF |9127562OSA |bOSA |d2019-03-14 |eOSA |l0 |o342.7308/58 LAW |r2019-03-14 |w2019-03-14 |yBK |cReference 920 01 7elkZJYr 992 01 342_730800000000000_58_LAW |bWVX_SWZRZZZZZZZZZZZ_UR_EP3 966 |cIn the Research Room